The Muscular Dystrophy Association (MDA) announces programming and fundraising events in support of people living with Amyotrophic Lateral Sclerosis (ALS) throughout ALS Awareness Month in May.
Congress passed it and now The ALS Disability Insurance Access Act needs only President Trump's signature to end the 5-month waiting period that stands in the way of benefits.
This year, the International Association of Fire Fighters (IAFF) launches its annual Fill the Boot fund-raiser for the Muscular Dystrophy Association (MDA) online to address social distancing guidelines for the firefighters and the vulnerable community MDA serves.
Dutch Bros Coffee and its customers joined together to raise $1.39 million for the Muscular Dystrophy Association (MDA) on the company’s 14th annual Drink One For Dane day held on May 8. More than 390 shops in seven states joined together with customers to support ALS research, patient care and advocacy.
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Tobii Dynavox, together with d-bur, have developed a suite of apps that aim to help make popular social media and streaming platforms more accessible for people with disabilities.
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In mice with a common ALS genetic mutation, changing the gut microbiome using antibiotics or fecal transplants could prevent or improve disease symptoms, according to scientists from Harvard University.
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A self-corrective mechanism at synapse doubles the lifespan of mice with ALS and suggests a new approach to therapy for human brain diseases, researchers from University of California – San Francisco note, in Neuron.
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A team of researchers led by scientists at the University of Toronto (U of T) has delayed the onset of amyotrophic lateral sclerosis (ALS) in mice. They are cautiously optimistic that the result, combined with other clinical advances, points to a potential treatment for ALS in humans.
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The Muscular Dystrophy Association (MDA) will host a special virtual conversation on Facebook Live about the precautions and best practices needed to protect the ALS community amid the COVID-19 pandemic, on Friday, May 1, from 3 pm to 3:30 PM ET.
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People with conditions such as spinal cord injury, Lou Gehrig’s disease, and multiple sclerosis are at risk of developing severe respiratory problems related to COVID-19 because the muscles that help them breathe already may not function normally.
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The onset and early progression of motor and cognitive symptoms, specific by disease type to each amyotrophic lateral sclerosis (ALS) patient, are determined by age and sex, and to some extend by mutations in ALS genes, a large data study has found, ALS News Today reports.
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Researchers from the Zuckerman Institute at Columbia University announce, in the journal Neuron, they have successfully found a gene that could work toward accelerating the progression of ALS or amyotrophic lateral sclerosis.
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Mitsubishi Tanabe Pharma America Inc recently presented results from a post-hoc analysis assessing its Phase 3 edaravone study reviewing functional changes in both bulbar and limb onset patients with amyotrophic lateral sclerosis (ALS).
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NEW YORK (Reuters Health) – A new amyotrophic lateral sclerosis (ALS) disability scale (ROADS) that uses the mathematically rigorous Rasch methodology outperforms the revised ALS Functional Rating Scale (ALSFRS-R) in measuring ALS patient-reported outcomes, researchers report.
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Children and teens with family members with amyotrophic lateral sclerosis, or ALS, help with bathing, dressing, eating and all types of caregiving activities, yet they may not have training or enough information about the disease, researchers suggest.
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Disease-prompting bundles of proteins found within cells are cleared by unexpected processes; that knowledge could lead to ALS therapeutic solutions, according to researchers from University of Arizona, in research published in Molecular and Cellular Biology.
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L-serine, a naturally occurring amino acid, is gaining increased attention from scientists as a possible treatment for ALS following a new study published recently in the Journal of Neuropathology & Experimental Neurology that suggests L-serine successfully reduced ALS-like changes in an animal model of ALS.
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Researchers from Japan report success in reproducing key ALS symptoms in zebrafish by remote controlling a disease-associated protein molecule using light illumination.
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