Category: Muscular Dystrophy

Muscular Dystrophy

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Grant Funds Next Step in Study to Assess Duchenne Progression Via Biomarkers

Duchenne UK, the Muscular Dystrophy Association (MDA) and Parent Project Muscular Dystrophy (PPMD) announce a joint grant of $686,500 to Dr William Evans (principal investigators) at the University of California, Berkeley to use a novel method to measure changes in total muscle mass in Duchenne muscular dystrophy patients through biomarkers in urine samples.

Muscular Dystrophy

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The Beauty of Patient Autonomy

Caring for patients with physical disabilities and debilitating health conditions involves not only providing the means to help them improve their functional abilities, but also being a partner in helping them live their lives on their terms. Jean L. Minkel, PT, ATP shares her experience in this feature.

FDA Names Synchron’s Stentrode Brain-Computer Interface a Breakthrough Device

The US Food and Drug Administration (FDA) has granted Breakthrough Device designation for Stentrode, an implantable medical device designed to translate brain activity or stimulate the nervous system from the inside of a blood vessel, without the need for open brain surgery, Synchron announces in a media release.

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People Living with FSHD Speak to the FDA About the Disease’s QOL Effects

The FSHD Society held a landmark meeting recently in which individuals and families living with facioscapulohumeral muscular dystrophy (FSHD) told representatives from the US Food and Drug Administration (FDA) about how the muscle-wasting disease affects their health, and what they hope future treatments will do to improve their quality of life.

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