Registration Now Open for 2023 MDA Clinical & Scientific Conference
Registration is open for the 2023 MDA Clinical & Scientific Conference, March 19-22, at the Hilton Anatole in Dallas and via live stream.
Category: Muscular Dystrophy
Muscular Dystrophy
Latest
Muscular Dystrophy
Latest
Cure Rare Disease Receives FDA Approval to Administer First-in-Human CRISPR Therapeutic for Duchenne
Cure Rare Disease announces the approval from the U.S. Food and Drug Administration to administer its very first therapeutic.
Muscular Dystrophy
Latest
How Does Duchenne Muscular Dystrophy Cause Heart Rhythm Problems?
Mutations that cause Duchenne muscular dystrophy slow electrical activity in the heart, causing abnormal heart rhythms, a study notes.
Gamers: MDA Rivals Streaming Event Takes Place June 18
MDA Rivals on Saturday, June 18, aims to support funding for people living with muscular dystrophy, ALS, and related neuromuscular diseases.
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Muscular Dystrophy Association Celebrates Lou Gehrig Day at Major League Baseball Games in June
The Muscular Dystrophy Association will honor Major League Baseball’s recognition of Lou Gehrig Day at games across the country in June.
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SOLVE FSHD Supports the FSHD Canada Foundation in Funding of US$1.2M in Multidisciplinary Biomarker Grants
SOLVE FSHD announces its financial support to FSHD Canada Foundation’s grant funding to facilitate FSHD biomarker research.
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FSHD Society and Critical Path Institute Collaborate to Collect Clinical Trial Data
The FSHD Society partners with Critical Path Institute to integrate trial data from FSHD-related clinical studies into C-Path’s RDCA-DAP.
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CureDuchenne and Pfizer Discuss Opening Trial Sites in Phase 3 CIFFREO Study of Gene Therapy
CureDuchenne released a webinar on the upcoming opening of U.S. trial sites for Pfizer’s CIFFREO trial, a phase 3 study of a gene therapy.
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Team Gleason Partners with Synchron to Redefine Accessibility
Team Gleason and Synchron announce a partnership agreement to provide patient-focused feedback on their platform to transform daily life.
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Parent Project Muscular Dystrophy Certifies Its First Duchenne Care Center in Michigan
Parent Project Muscular Dystrophy certifies the clinic at Spectrum Health Helen DeVos Children’s Hospital in Grand Rapids, Michigan.
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Daily Steroids Safe and Slow Progression of Duchenne Muscular Dystrophy, Study Suggests
New research published in JAMA recommends daily steroid doses for children with Duchenne muscular dystrophy (DMD).
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MDA Launches Pinup & Roundup Campaigns to Fund Summer Camp
More than 1,000 partner locations nationwide are participating in campaigns to fund summer camp for kids living with neuromuscular diseases.
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New Research About Home-Based Duchenne Video Assessment Appears in PLOS ONE
Emmes announces that Casimir’s research on the development of the Duchenne Video Assessment scorecards was published in PLOS ONE.
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FSHD Society Achieves Accreditation from BBB Wise Giving Alliance
FSHD Society achieves accreditation, signifying that it is deserving of donor trust as it is a well-run nonprofit organization.
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Muscular Dystrophy Association Accelerates Research, Advances Care, and Advocates to End ALS
MDA announces programming and events in support of people living with ALS throughout ALS Awareness Month in May.
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FSHD Society Deploys AI Technology to Improve Clinical Trial Design
The FSHD Society is launching a collaboration involving CTRN and BullFrog AI to analyze a dataset collected from patients with FSHD.
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Lab-Grown Muscle Stem Cells Repair Muscle Injury and Disease, Mouse Study Suggests
Scientists say they have successfully cultivated human muscle stem cells capable of renewing themselves and repairing muscle tissue damage.
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Fill the Boot MDA Fundraiser Kicks Off for 2022
MDA and the International Association of Fire Fighters kick off Fill the Boot fundraising events for 2022 on National Boot Day.
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