Virtual MDA Summer Camp: Registration Now Open
Registration is now open for the Muscular Dystrophy Association's free virtual Summer Camp for kids. Themed "The Great Escape," it will be offered in 1-week sessions between June 21 and August 2.
Category: Muscular Dystrophy
Muscular Dystrophy
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Muscular Dystrophy
Latest
Duchenne UK, Parent Project Muscular Dystrophy, Announce Research Grant Recipient
Parent Project Muscular Dystrophy (PPMD) and Duchenne UK announce Professor Kanneboyina Nagaraju at Binghamton, the State University of New York, as the recipient of their Joint Research Grant Call of 2020.
Muscular Dystrophy
Latest
PPMD Invests in Regenerative Medicine Therapy for Duchenne
Parent Project Muscular Dystrophy (PPMD) announces a $1 million programmatic investment in Satellos Bioscience Inc (Satellos) to support the development of a new regenerative medicine for the therapeutic treatment of Duchenne muscular dystrophy.
PTC Therapeutics Hosts Translarna Deep Dive Webinar Dec 15
PTC Therapeutics Inc will host a webinar in its deep dive series discussing Translarna on Tuesday, December 15 at 12:00 noon ET.
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Powered Orthotic with Shoulder Assist Leads the Pack of New Products from Abilitech Medical
Abilitech Medical launches the Abilitech Assist, an assistive technology aid designed to help people with minimal strength resulting from neuromuscular disorders facilitate independent control of their arms by supporting and assisting both their shoulder and elbow.
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Grant Funds Next Step in Study to Assess Duchenne Progression Via Biomarkers
Duchenne UK, the Muscular Dystrophy Association (MDA) and Parent Project Muscular Dystrophy (PPMD) announce a joint grant of $686,500 to Dr William Evans (principal investigators) at the University of California, Berkeley to use a novel method to measure changes in total muscle mass in Duchenne muscular dystrophy patients through biomarkers in urine samples.
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PPMD Presents 1-Year Newborn Duchenne Screening Project Update
Parent Project Muscular Dystrophy (PPMD)’s Newborn Screening Pilot has been successfully screening babies born in New York State for Duchenne for over a year. Data were presented at the Association of Public Health Laboratories Newborn Screening Virtual Symposium about the ongoing pilot in New York State.
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Muscular Dystrophy Association Elects New President and CEO
The Muscular Dystrophy Association (MDA) has elected Donald S. Wood, PhD, as President and Chief Executive Officer, it announces. Dr Wood previously was Vice Chairman of the Board for the MDA and Vice President of Institutional Effectiveness at Odessa College.
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People Living with FSHD Tell Their Stories in New Report
The FSHD Society releases Voice of the Patient Report, a publication based on its June 29, 2020, externally led patient-focused drug development (EL-PFDD) meeting.
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Funding Aims to Advance Development of Duchenne Bone Wastage Therapy
CureDuchenne Ventures announces an investment in Mesentech Inc, a regenerative medicine company with a prodrug platform that selectively delivers therapeutics to bone. The investment is part of a new joint funding collaboration with the Charles H. Hood Foundation (CHF) that looks to advance early-stage research for pediatric conditions.
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Cystic Fibrosis Gene’s Duchenne Effect
A mutation in the gene that causes cystic fibrosis may accelerate heart function decline in those with Duchenne muscular dystrophy (DMD), UT Southwestern researchers suggest, in the Journal of the American Heart Association.
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MDA Launches MOVR Visualization and Reporting Platform
The Muscular Dystrophy Association (MDA) announces the launch of the neuroMuscular ObserVational Research (MOVR) Visualization and Reporting Platform (VRP) as a way to help advance neuromuscular disease research and improve patient care.
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The MDA Kevin Hart Kids Telethon Adds to Lineup
The Muscular Dystrophy Association (MDA) has added Garcelle Beauvais, Aloe Blacc, Bryan Cranston, Adam Devine, Fat Joe, Liz Gillies, Aldis Hodge, Edwin Hodge, DJ Khaled, Daniel Levy, Loni Love, Leslie Mann, Robin Thicke, Gabrielle Union Wade and John David Washington to the lineup for The MDA Kevin Hart Kids Telethon, it announces.
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FDA Fast-Tracks Duchenne Gene Therapy
Pfizer Inc’s investigational gene therapy candidate (PF-06939926) being developed to treat Duchenne muscular dystrophy (DMD) received Fast Track designation from the U.S. Food and Drug Administration (FDA), it announces.
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LGMD Awareness Foundation Inc Debuts
LGMD Awareness Foundation Inc announces its formation as a 501(c)(3) non-profit advocacy organization dedicated to advocating for and raising awareness of Limb Girdle Muscular Dystrophy (LGMD) around the world.
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MDA Hosts Let’s Play for a Cure Streaming Event
The Muscular Dystrophy Association (MDA) announces MDA Let’s Play For A Cure, a multi-week streaming event featuring 7 weeks of live gaming and esports events produced and livestreamed by MDA.
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Muscular Dystrophy Association Awards 15 Neuromuscular Disease Research Grants
The Muscular Dystrophy Association (MDA) announces the awarding of 15 new MDA grants totaling more than $4 million toward research focused on a variety of neuromuscular diseases.
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Is This a Treatment Path for Muscular Dystrophy?
By targeting MKP5, an enzyme that had been considered “undruggable,” researchers at Yale University have identified a possible treatment path for Duchenne muscular dystrophy.
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