The Michael J. Fox Foundation for Parkinson’s Research (MJFF) offers “Navigating Cognitive Changes in Parkinson’s Disease,” a free guide to educate patients and families about potential thinking and memory symptoms in Parkinson’s, provide practical strategies to work through cognitive changes, and share the latest research and therapies.
The guide, authored by MJFF Vice President of Medical Communications and movement disorder specialist Rachel Dolhun, MD, provides clarity around different forms of cognitive changes, including mild cognitive impairment, Parkinson’s dementia, and dementia with Lewy bodies.
It was developed in collaboration with patients and families who live with Parkinson’s and the clinicians who care for them. Through three working groups comprised of MJFF’s Patient Council, care partners, social workers, and movement disorder and cognitive physicians, the Foundation assembled varied perspectives and expertise to source guide topics, themes, and tips.
Care partners also completed a questionnaire to shed light on the challenges experienced by families living with dementia, according to a media release from MJFF.
“I regularly hear from patients that dementia is one of the most worrisome symptoms of Parkinson’s. And yet, we don’t talk about it enough,” Dolhun shares. “The goal of this guide is to encourage people with Parkinson’s and their loved ones to learn more about cognitive changes and to take action — whether that’s opening a discussion to lessen fear and improve care or practicing healthy habits to boost brain health. There’s a lot you can do today about cognitive changes.”
In the comprehensive 33-page guide, patients and families can explore:
- Easy-to-understand definitions of cognition and dementia, and the differences between mild cognitive impairment, Parkinson’s dementia, and dementia with Lewy bodies;
- Steps and activities to boost brain health;
- Practical tips to open the conversation about cognitive changes;
- Strategies to work through cognitive changes in PD; and
- Information on the latest treatments and ongoing research.
A free webinar, featuring Dr Dolhun and Parkinson’s community members and experts, will take place Thursday, September 19, at 12 PM ET.
For more information, visit The Michael J. Fox Foundation for Parkinson’s Research.
[Source(s): The Michael J. Fox Foundation for Parkinson’s Research, PR Newswire]