LGMD Awareness Foundation Inc announces its formation as a 501(c)(3) non-profit advocacy organization dedicated to advocating for and raising awareness of Limb Girdle Muscular Dystrophy (LGMD) around the world.
In collaboration with other LGMD foundations, its focus is to provide curated educational information and resources for the global LGMD community and public.
Carol Abraham, President and Founder of LGMD Awareness Foundation Inc, has been living with LGMD type 2A (also known as LGMD2A or LGMDR1 Calpain 3-related), a form of Limb Girdle Muscular Dystrophy, since symptoms appeared at age 5. For the past 6 years, Carol has been coordinating LGMD Awareness Day, which is recognized worldwide annually on September 30, according to a media release from LGMD Awareness Foundation Inc.
Important Issues to the LGMD Community
Issues of importance to the LGMD community are genetic testing and identification of sub-type, support services to individuals and families coping with complex medical needs, the promotion of innovative medical research and product development, and insurance practices that assure patient access to medically necessary therapies.
The LGMD Awareness Foundation Inc hopes that by increasing awareness of LGMD, individuals living with this disease will have an easier time accessing genetic diagnoses, care and treatment, the release continues.
[Source(s): LGMD Awareness Foundation Inc, PR Newswire]