Anxiety amplifies the physical signs of Parkinson’s disease, according to people who experience both conditions, researchers suggest, in a study published in PLOS ONE.

Study participants did not see talking therapy as a useful solution, and more support was needed for people with the conditions, along with their carers and health professionals, the researchers add.

In-Depth Interviews

Led by researchers from the University of Plymouth and Glasgow Caledonian University, the study explored the lived experience of anxiety for people with Parkinson’s. Authors conducted in-depth interviews with six people living with Parkinson’s and asked them about their anxiety. Three male and three female participants, each at varying stages of Parkinson’s, were interviewed.

Results uncovered primary themes that:

  • Anxiety amplifies their physical Parkinson’s symptoms
  • Anxiety affects their cognition and freezes the thought process
  • Anxiety was ‘always there’ and they were constantly trying to find ways to cope

“My own experience of anxiety is that it can be a crippling illness. I used to have panic attacks, and the fear of getting one was almost worse than actually having it. I think anxiety can be a real scourge for people with Parkinson’s who suffer from it.”

— a study participant

Occupational Therapy-Based Solution Could Result

People’s experiences of anxiety varied significantly, and there needed to be a person-centered solution to help, researchers conclude.

Lead author, Chris Lovegrove, will now use the findings to develop a new occupation-based complex intervention to help people with Parkinson’s live well with anxiety. He has recently been awarded a Clinical Doctoral Research Fellowship by Health Education England and the National Institute for Health Research (NIHR) to pursue this, according to a media release.

“There has been research into non-medical interventions, such as talking therapy, for people with Parkinson’s and anxiety, but this was the first study to speak to people themselves to understand what it’s like for them. I was fortunate to have conducted interviews with study participants in person pre-COVID, so I was able to really understand their experiences through their body language and ask ‘how are you really?’

“It was very sad to hear how hard it has been for some people, but it’s great we’re on the road to help. Ultimately, I want to produce a framework to help people with Parkinson’s live well with anxiety, as well as support their care partners and occupational therapists in the process. The findings from this research will be vital in shaping that.”

— Chris Lovegrove, who also practices as an occupational therapist at Royal Devon and Exeter NHS Foundation Trust

“I am delighted to be involved in this hugely important work looking at ways to help people with Parkinson’s cope with anxiety because there is no medication available to them, so occupational therapy is a real solution. By speaking to real people with Parkinson’s we’ve really started to gain insights into how we can improve their lives.

“What makes this research unique is the sheer depth of these interviews looking at their lived experience. We needed to better understand what the issues are before we could start designing interventions.”

— Dr. Katrina Bannigan, Head of the Department of Occupational Therapy and Human Nutrition and Dietetics at Glasgow Caledonian University

[Source(s): University of Plymouth, MedicalXpress]

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