PTC Therapeutics Inc announces the launch of the eighth annual STRIVE awards program for Duchenne muscular dystrophy (Duchenne). Through this program, PTC provides grants to patient advocacy organizations who are committed to developing initiatives that address the unmet needs of the Duchenne community.
Organizations may apply for a grant to fund their projects focused on one of two categories: Innovation or Transition to Adulthood.
“Local, independent organizations play a vital role in supporting and guiding individuals living with Duchenne and their families as they journey through previously unattainable milestones. We’re excited to review the proposals and look forward to the great work the organizations will carry out with the STRIVE grant awards.”— Mary Frances Harmon, Senior Vice President, Corporate Relations, PTC Therapeutics
Until recently, children with Duchenne usually did not live beyond their teens; however, improvements in the treatment and management of Duchenne have increased life expectancy, and now many Duchenne patients are living well into their 30s and 40s As a result, there is an increasing need for psychosocial support for the Duchenne community. The future for people living with Duchenne is broadening, and innovative programs that provide support and encourage independence are of infinite value.
Since its inception, the STRIVE program has supported more than 35 patient initiatives from not-for-profit organizations from 20 countries. Past STRIVE grant recipients have developed programs to support the transition from adolescence to adulthood, improved access to diagnosis and treatment, supplied vital physical and social care to those affected and their caregivers, created career opportunities for adults with Duchenne and raised awareness of the disease in educational, public, and healthcare settings.
The 2022 application process is now open to patient advocacy organizations. The deadline for submissions is March 18, 2022. Eligible organizations may submit proposals through an application form. The 2022 STRIVE award recipients will be announced in September.
[Source(s): PTC Therapeutics Inc, PR Newswire]