CureDuchenne announces the return of its FUTURES National Conference. The hybrid online/in-person event will take place October 8-10, 2021 at the Texan Gaylord Resort & Convention Center in Grapevine, Texas, as well as online.
FUTURES offers education, resources and connection to the Duchenne community. This year’s conference agenda and special events will focus on quality of life: providing families with the information, support and motivation they need while navigating life with Duchenne.
“I’m excited to be part of this conference and am looking forward to connecting with the Duchenne community.”
— Sean Baumstark, co-creator of the 2 Disabled Dudes podcast and the 2021 FUTURES keynote speaker
Events and Activities
Last year’s event was cancelled due to the pandemic. However, this year the conference will offer multiple events, including family-friendly social receptions, robust presentations and panel discussions, a gene therapy and gene editing symposium, a resource fair, an esports lounge and a pajama movie night for the kids.
“After a long year away from our annual FUTURES event, I’m looking forward to getting together again with the Duchenne community, catching up with old friends and making new ones. As an organization, we made important progress and learned a lot over the past year. We’ve focused on engaging with families at all stages of their journey and guiding them to embrace each moment.”
— Tiffany Cook, senior director of CureDuchenne Cares
Whether enjoyed virtually or in person, FUTURES attendees are guaranteed exclusive access to important updates on therapeutic research, thoughtful discussions on the emerging approaches to care that enhance quality of life, a wealth of valuable resources and time well-spent with the Duchenne community.
CureDuchenne will offer on-site childcare so guests can bring the whole family and still focus on maximizing their educational and social experience. CureDuchenne has also teamed up with the Duchenne Family Assistance Program to help families who would like to attend the conference.
Assistance is available in the form of discounted registration fees, hotel rooms and flights to/from the conference in Grapevine, Tex.
The 2021 FUTURES kicks off with a welcome reception at the Glass Cactus on Friday, October 8 with appetizers, beverages and live entertainment for all.
Registration for 2021 FUTURES opens on May 26 with a $21 discount for the first 21 families who register online.
For more information, visit CureDuchenne.
[Source(s): CureDuchenne, PR Newswire]
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